Advocacy & support groups
Joe and Jill, Family
Support Educators
Build a connection
Advocacy groups help connect patients and families to education, research, support services, and the broader Rett community. Here are a just a few of the organizations that work to raise both awareness of Rett syndrome and funds directed toward research while providing programs and information to help individuals with Rett syndrome.
Girl Power 2 Cure
The mission of nonprofit organization Girl Power 2 Cure is to empower and support families affected by Rett syndrome, to educate and enrich their lives, and those who teach and support them, and to help eradicate the disorder through research-targeted donor outreach. GP2C inspires action, supports families, educates and raises awareness, and funds research for Rett syndrome.
Northwest Rett Syndrome Association
The Northwest Rett Syndrome Association is an Oregon-based 501(c)3, founded by a group of parents and professionals who recognized the need for a strong regional support group. Members are individuals, families, friends, and professionals impacted by Rett Syndrome across the Pacific Northwest, including Alaska, Idaho, Oregon, Washington, and British Columbia. NWRSA offers connection, education, and advocacy for individuals, families, and communities impacted by Rett Syndrome.
Maddy, age 21, living with Rett syndrome,
with her family
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Maddy, age 21, living with Rett syndrome,
with her family
